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	<title>Grading Girl &#187; CMT</title>
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	<description>T.L.C. - Tender Loving Critic ♥</description>
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		<title>GG&#8217;s First Giveaway &#8211; For a Very Good Cause!</title>
		<link>http://www.gradinggirl.com/archives/2266</link>
		<comments>http://www.gradinggirl.com/archives/2266#comments</comments>
		<pubDate>Mon, 28 Sep 2009 12:09:24 +0000</pubDate>
		<dc:creator>GradingGirl</dc:creator>
				<category><![CDATA[Giveaway Contests!]]></category>
		<category><![CDATA[TLC Speaks]]></category>
		<category><![CDATA[Charcot Marie Tooth]]></category>
		<category><![CDATA[CMT]]></category>
		<category><![CDATA[tracy adler snackware]]></category>
		<category><![CDATA[yum yum dish]]></category>
		<category><![CDATA[yum yum time is over]]></category>

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		<description><![CDATA[Grading Girl&#8217;s First Giveaway!! October 13th update:  The winner of this giveaway is Stefanie Dell&#8217;Aringa.  She will receive a set of the Yum Yum Time Bowls!  Check out her beautiful poem: Unwrap Me by Stefanie Dell’Aringa Scout’s honor, this is my life: I feel like an Egyptian mummy being wrapped in slow motion from the [...]]]></description>
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<h3 style="text-align: center;">Grading Girl&#8217;s First Giveaway!!</h3>
<p style="text-align: center;"><strong>October 13th update:  The winner of this giveaway is Stefanie Dell&#8217;Aringa.  She will receive a set of the Yum Yum Time Bowls!  Check out her beautiful poem:</strong></p>
<p>Unwrap Me<br />
by Stefanie Dell’Aringa</p>
<p>Scout’s honor, this is my life:<br />
I feel like an Egyptian mummy<br />
being wrapped in slow motion from the feet up<br />
My insides are like pottery breaking<br />
As the python cloth squeezes<br />
Unwrap me, please, and let me be a boy again<br />
Because my ankles are tired<br />
And I don’t like the word “prosthetic”<br />
If Star Wars was real, I’d light saber myself<br />
Out of this mess<br />
Hurry, and find me a cure<br />
Until then, I’ll go outside<br />
I’ll blow hot, angry air into my trumpet<br />
I’ll eat cake. Sweet!<br />
I’ll decide I can wait<br />
And then I’ll go to bed and dream<br />
Of a ladder made of Legos<br />
That reaches straight to heaven<br />
and it doesn’t hurt to climb it</p>
<p>___________________________________________________________________________________________________________</p>
<p style="text-align: left;">A few years ago, I stumbled upon the most adorable bowls that offer portion control with a smile. These unique little conversation pieces are perfectly portioned for snacks &#8211; nuts, fruit, candy . . . you name it.  I have two sets and bought another one for my brother and another for my mom.  These are the subjects, in fact, of one of Grading Girl&#8217;s first reviews.  Check it out for details:  <a href="http://www.gradinggirl.com/archives/462">Yum Yum Time</a></p>
<p style="text-align: left;">
<div id="attachment_2270" class="wp-caption aligncenter" style="width: 224px"><a href="http://www.yumyumdish.com/"><img class="size-medium wp-image-2270" title="Yum Yum Dishes" src="http://www.gradinggirl.com/wp-content/uploads/2009/09/yumdish-214x300.jpg" alt="Tracy Adler's Snackware - Yum Yum Dishes" width="214" height="300" /></a><p class="wp-caption-text">Tracy Adler&#39;s Snackware, Yum Yum Dishes - Win These! </p></div>
<p style="text-align: left;">
<p style="text-align: left;">Well, since purchasing these bowls and writing my review, I&#8217;ve sadly learned that Tracy Adler&#8217;s 9-year old son, Elliot, has been diagnosed with<span style="text-decoration: underline;"> CMT2 (Charcot Marie Tooth)</span> in October of 2007 when he was 7 years old.  In a nutshell, his nerves are dying &#8211; starting at his toes.  Right now, Elliot must wear braces on his legs while he fights very hard to not let this stop him from doing all the things he wants to do &#8211; a very heavy task for a young, brave boy!  There is not much awareness out there of this degenerative disease much less the funds for research.  Perusing the <a href="http://www.hnf-cure.org/whatiscmt/cmt_faq">Hereditary Neuropathy Foundation</a> website, I shockingly discovered that so little is known about this that many people undergo years of testing before being diagnosed because most doctors cannot even recognize the symptoms!!!  As the disease progresses, many people have to wear braces constantly and/or use a wheelchair.  In the worst cases, CMT can impair breathing or even death.   As Tracy writes on Elliot&#8217;s blog, whatever nerve and subsequent muscle loss he experiences between now and a cure will most likely be gone forever. So a cure is not only important &#8211; but<span style="font-weight: bold;"> time is of the essence</span>.</p>
<p style="text-align: left;"><em>To help raise much needed awareness of this horrible disease, Grading Girl is hosting a contest:</em></p>
<h4 style="text-align: center;">CMT &#8211; GG&#8217;s Challenge for Awareness</h4>
<p style="text-align: center;">
<div id="attachment_2292" class="wp-caption aligncenter" style="width: 230px"><a href="http://elliotadlerscorner.blogspot.com/"><img class="size-full wp-image-2292" title="Elliot Adler " src="http://www.gradinggirl.com/wp-content/uploads/2009/09/IMG_0024.JPG" alt="Elliot Adler" width="220" height="165" /></a><p class="wp-caption-text">Elliot Adler</p></div>
<p>Tracy Adler has graciously offered to <span style="color: #008000;">giveaway a set of her YumYum dishes</span> (set of four/one of each color) to the lucky person who writes:</p>
<ul>
<li>a short poem illustrating the perseverance of this brave boy OR</li>
<li>a statement that pinpoints what CMT is</li>
</ul>
<ul>
<li>no minimum or maximum length</li>
<li>if you&#8217;re penning a poem, it does not have to rhyme</li>
</ul>
<ul>
<li>the statement or poem that touches the heart of this boy&#8217;s bravery will win the set.  I&#8217;m not looking for Shakespeare, only true genuine words!</li>
</ul>
<p><strong><em>Here&#8217;s all you need to do</em></strong>:</p>
<p>1.  Go to Elliot&#8217;s blog titled <a href="http://elliotadlerscorner.blogspot.com/">Elliot&#8217;s Corner</a> and read a couple of his (short) blogs to find out about his condition.</p>
<p>2.  Come back to this blog on Grading Girl.  Submit your poem via replying with a comment.</p>
<p>3.  Please submit by Monday, October 12th.  The winner will be notified within a few days of the deadline and will receive his/her Yum Yum dishes!!</p>
<p style="text-align: center;">Elliot&#8217;s blog is at <a href="http://elliotadlerscorner.blogspot.com/">http://elliotadlerscorner.blogspot.com/</a></p>
<p style="text-align: center;">Tracy Adler&#8217;s Snackware site is <a href="http://www.hnf-cure.org/">www.yumyumdish.</a></p>
<p style="text-align: center;">Find out more about CMT at<a href="http://www.hnf-cure.org/"> Hereditary Neuropathy Foundation</a></p>
<p style="text-align: center;"><span style="color: #008000;">Elliot has his own Twitter account and updates regularly.  Following him is a joy @ElliotsCorner.  Tracy also updates on Elliot&#8217;s condition @TracyAdler.  Follow them both!</span></p>
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