GG’s First Giveaway – For a Very Good Cause!

September 28, 2009 by  
Filed under Writing

Grading Girl’s First Giveaway!!

October 13th update:  The winner of this giveaway is Stefanie Dell’Aringa.  She will receive a set of the Yum Yum Time Bowls!  Check out her beautiful poem:

Unwrap Me
by Stefanie Dell’Aringa

Scout’s honor, this is my life:
I feel like an Egyptian mummy
being wrapped in slow motion from the feet up
My insides are like pottery breaking
As the python cloth squeezes
Unwrap me, please, and let me be a boy again
Because my ankles are tired
And I don’t like the word “prosthetic”
If Star Wars was real, I’d light saber myself
Out of this mess
Hurry, and find me a cure
Until then, I’ll go outside
I’ll blow hot, angry air into my trumpet
I’ll eat cake. Sweet!
I’ll decide I can wait
And then I’ll go to bed and dream
Of a ladder made of Legos
That reaches straight to heaven
and it doesn’t hurt to climb it

___________________________________________________________________________________________________________

A few years ago, I stumbled upon the most adorable bowls that offer portion control with a smile. These unique little conversation pieces are perfectly portioned for snacks – nuts, fruit, candy . . . you name it.  I have two sets and bought another one for my brother and another for my mom.  These are the subjects, in fact, of one of Grading Girl’s first reviews.  Check it out for details:  Yum Yum Time

Tracy Adler's Snackware - Yum Yum Dishes

Tracy Adler's Snackware, Yum Yum Dishes - Win These!

Well, since purchasing these bowls and writing my review, I’ve sadly learned that Tracy Adler’s 9-year old son, Elliot, has been diagnosed with CMT2 (Charcot Marie Tooth) in October of 2007 when he was 7 years old.  In a nutshell, his nerves are dying – starting at his toes.  Right now, Elliot must wear braces on his legs while he fights very hard to not let this stop him from doing all the things he wants to do – a very heavy task for a young, brave boy!  There is not much awareness out there of this degenerative disease much less the funds for research.  Perusing the Hereditary Neuropathy Foundation website, I shockingly discovered that so little is known about this that many people undergo years of testing before being diagnosed because most doctors cannot even recognize the symptoms!!!  As the disease progresses, many people have to wear braces constantly and/or use a wheelchair.  In the worst cases, CMT can impair breathing or even death.   As Tracy writes on Elliot’s blog, whatever nerve and subsequent muscle loss he experiences between now and a cure will most likely be gone forever. So a cure is not only important – but time is of the essence.

To help raise much needed awareness of this horrible disease, Grading Girl is hosting a contest:

CMT – GG’s Challenge for Awareness

Elliot Adler

Elliot Adler

Tracy Adler has graciously offered to giveaway a set of her YumYum dishes (set of four/one of each color) to the lucky person who writes:

  • a short poem illustrating the perseverance of this brave boy OR
  • a statement that pinpoints what CMT is
  • no minimum or maximum length
  • if you’re penning a poem, it does not have to rhyme
  • the statement or poem that touches the heart of this boy’s bravery will win the set.  I’m not looking for Shakespeare, only true genuine words!

Here’s all you need to do:

1.  Go to Elliot’s blog titled Elliot’s Corner and read a couple of his (short) blogs to find out about his condition.

2.  Come back to this blog on Grading Girl.  Submit your poem via replying with a comment.

3.  Please submit by Monday, October 12th.  The winner will be notified within a few days of the deadline and will receive his/her Yum Yum dishes!!

Elliot’s blog is at http://elliotadlerscorner.blogspot.com/

Tracy Adler’s Snackware site is www.yumyumdish.

Find out more about CMT at Hereditary Neuropathy Foundation

Elliot has his own Twitter account and updates regularly.  Following him is a joy @ElliotsCorner.  Tracy also updates on Elliot’s condition @TracyAdler.  Follow them both!

  • Winsor Pilates

Comments

23 Responses to “GG’s First Giveaway – For a Very Good Cause!”
  1. Stefanie Dell'Aringa says:

    Here is my poem dedicated to Elliot Adler:

    Unwrap Me
    by Stefanie Dell’Aringa

    Scout’s honor, this is my life:
    I feel like an Egyptian mummy
    being wrapped in slow motion from the feet up
    My insides are like pottery breaking
    As the python cloth squeezes
    Unwrap me, please, and let me be a boy again
    Because my ankles are tired
    And I don’t like the word “prosthetic”
    If Star Wars was real, I’d light saber myself
    Out of this mess
    Hurry, and find me a cure
    Until then, I’ll go outside
    I’ll blow hot, angry air into my trumpet
    I’ll eat cake. Sweet!
    I’ll decide I can wait
    And then I’ll go to bed and dream
    Of a ladder made of Legos
    That reaches straight to heaven
    and it doesn’t hurt to climb it

  2. Kelly Ripken says:

    Living with CMT is like walking on quicksand – no matter how softly you step, you slowly sink footprint-by-footprint until your footprints are all that is left of your sole.

  3. Lee Steeger says:

    Life may be hard for some, others will be fine and others will be clouded.
    No matter what happens you can only look forward.
    For only looking forward can you see your future and only in the past can you see the past.
    If you only look forward you can see the future of what may be, but in their past is clouded by the bad times of your life.
    Never look back if there is a future.

  4. Kelly Sand says:

    Loss of nerves,
    Gain in strength.
    Inherited from mom and dad,
    Loved by mom and dad.
    Weakness makes you stronger.
    “Family Disease”,
    Family bond.
    Charcot, Marie, Tooth,
    Nothing to do with teeth.
    We can beat CMT.
    Looking for a cure,
    Sometimes the best cure is love.
    Loss of sensation in hands,
    Gain in sensation of heart.

  5. Ellen Pratt says:

    Determination is Key
    By: Ellen Pratt

    Way to be a Soldier
    Fighting harder than most.
    Many give up
    While you have kept on going.
    The bravery is heartening
    And it will inspire others.
    It’s a shame this has happened to you
    Hopefully a cure will be found
    To help you and others in need.
    Good luck to you –
    You have made a difference
    In the life of others
    Including mine.

  6. Dave Tibbobt says:

    Elliot Never Ending

    As you walk toward light
    Of better days,
    You make me wonder
    For what the world pays.
    How can you
    The ray of shine
    Have heart to walk
    Along this line?
    Your strength hold true
    As your mark be made.
    Thoughts of you
    Will never fade.
    For you look faintly
    Upon the low.
    Could it be a miracle
    How do you know?
    I cannot be told
    Your heart beats undivine
    For you are there
    Making whole out of mine.
    Your vision be held high
    As you blow away
    On that trumpet you hold
    for not tomorrow, but today!
    It is not the yellow
    That makes the bus
    It is the soul inside it
    Which causes the fuss.
    Elliot of nine
    Be born today
    You make our world
    A better place to stay.

  7. D-H Hybrid says:

    Tough steps to take,
    Hard decisions to make.

    Courage in his heart
    Wanting a new start.

    Living giggles and laughter
    Dreaming of happily ever after.

    Tingling toes
    Life, before it goes.

    Holding on tight
    Fight Fight Fight.

    Battle till the end.
    Never descend

    Elliot, good luck –
    Never give up.

    D-H Hybrid

  8. James Lope says:

    Never lose hope, keep living your life to your best ability, always be positive. Never look down keep your head up for a cure may soon come and things will get better.

  9. Melanie Carlson says:

    His nerves are dying, starting at his toes
    from a disease that nobody really knows.
    It’s tiring and terrifying
    but having family and friends by his side is inspiring.
    Everyday gets harder and harder
    But as time passes he gets mentally stronger.
    Being brave at his age is a hard thing to do
    but with his perseverence, it’s easy for him to!

  10. Fernando Foladoppo says:

    Never before has a boy fought so hard
    Of a disease not even put on a sympathy card.
    No one knows much of this dreadful disease
    He can only hope of a cure, Oh please! Oh please!

    Starts from his toes, and goes to his nose
    Nerves in his body, dying in numbers
    Muscles are leaving, never returning
    His whole family, always concerning.

    He needs help from any one possible
    Lend a helping hand, make this tolerable.
    Good luck to the brave Elliot Adler, give up never
    Our prayers are with you, forever and ever.

  11. Carrie Scanley says:

    Time is of the essence
    How much damage will be done?

    He starts to go numb
    Starting from his feet
    He hopes he can beat it.

    Life is changing
    Will it ever be the same?
    Will Elliot ever realize how he got caught up in this game?

    Hoping for a cure
    Waiting brave and strong
    Elliot will keep holding on.

    Time is of the essence
    When will a cure will be created?
    Because everyone is wondering how much damage will be done?

  12. S Repkee says:

    Way to stay strong
    Through all the hard times
    Keep up hope
    Possibilities are endless
    So don’t give up now
    Even though the disease is rare
    There may be a cure
    Keep on fighting
    And so will the doctors
    So hold on tight
    And live your life

  13. K Kass says:

    Being a little boy is an adventure of life.
    It is most certainly worth fighting the fight.
    Running, swimming and bike riding too,
    Are all playful things that I cannot do.
    Wishing to climb high to the top of a tree.
    Oh, all the things I am striving to be.
    With all of the struggles that I’ve had to face,
    Why me? Why now? Why in this place?
    Day by day I must live with this burden,
    And most days people won’t see how badly I am hurting.
    But I will go on living the life of a young boy,
    A boy who struggles finding life’s wonders and joys.

  14. Tanner Nohm says:

    Look ahead…
    You feel like you’re sinking but don’t stop swimming.
    You feel the water is closing in on you.
    The brisk cold water shutting down your lungs.
    Every breath is like your last.
    You try to keep afloat… but you can’t!
    You need someone to save you.
    You feel alone…Desperate for someone to save you.
    But don’t give up!
    Keep pushing forward.
    There’s always a way…
    There’s always a way…
    Don’t stop!
    Look ahead…

  15. Gabrielle Gibbs says:

    There is a young boy with such a big heart
    whose body is slowly falling apart.
    this disease doctors dont know about
    will never make Elliot strike out.
    A boy with his heart will never give up
    even when his muscles dont allow him to sit up.
    I think everyone agrees
    that this is a terible disease

  16. B Sund says:

    Life will always be filled with struggles,
    some more difficult than others.
    But nonetheless we must fight through
    We must hold our heads high and continue to fight.
    But sometimes we face struggles that seem impossible to overcome.
    For these we need the support of others,
    our own will and perseverance is not enough
    We cannot give up in the face of these difficult struggles.
    Keep your head held high and continue to fight.
    Together we shall overcome.

  17. Meg Gorby says:

    I wake up every morning.
    I am grateful for this gift.
    Seeing the world each day
    Gives my heart a lift.
    I realize that I am not
    As strong as those near me.
    But that’s okay, I don’t care
    I won’t let that stop me.
    Everyone is different
    Of that I am quite sure.
    Every day, though, I still hope
    Doctors find a cure.
    My muscles may be dying
    But I will never quit
    Living each day to the fullest
    And making the most of it

  18. Kelly Cameron says:

    From your toes to your nose
    Stay strong and don’t let go

    Leg brace?
    A piece of cake

    Impaired nerves you should not fear
    The end may not be that near

    Have hope and keep that smile.
    Stay a child for a while.

    Feeling may be gone forever
    But you should not give up, ever

  19. ASanchez says:

    An eight year old boy
    Diagnosed with a disease,
    Not playing much with his toys
    Or even feeling the breeze.

    Just a boy of eight years old
    And a cure not yet found,
    But he does not frown
    Before or after he’s consoled.

    You have some plans
    Of joining the band.
    The disease will soon be banned
    When someone gives you a hand.

  20. Chip Miles says:

    Everyday’s a struggle
    When you know you’re in trouble.
    Waiting anxiously for a cure,
    The chance of it coming you’re not sure.
    So you tell yourself you’re okay
    You ignore the doubts as you face the day.
    And you show the world that you can do this.
    You fight the disease and you are relentless.

  21. David Graves says:

    A 9 year old boy with the fight of a man
    Has a serious task at face and at hand.
    Every step is a challenge for him
    But he does not frown, instead he grins.
    The disease is strong, and starts at his feet,
    But so is his heart as it continues to beat.
    His life is different from every other kid,
    No one has walked in the shoes he is in.
    Keep on fighting, I’ll be the biggest fan
    Of the 9 year old boy with the fight of a man.

  22. Pete Perkins-Hurd says:

    Everyday
    Every day he turns to Bravery
    CMT is his own personal slavery
    Every day He looks for Hope
    Will Adler give up?
    The answer is no, never, Nope
    Every day the illness is a hassle
    Can’t enjoy his childhood like the “little Rascal”
    Every day he feels and hears the bad news, Charcot Marie Tooth
    Everyday Doctor must look to find a Cure as if they were a famous sleuth
    Every day he feels his nerves dying, I know his parents are crying, on caring people he will be relying.
    Every day we should support him as we were on the same team.
    Every day we must so, Elliot can live out his dreams

  23. Allison Graves says:

    He’s only nine and things arent fine,
    Tripped up with CMT but no one really sees,
    The courage that Elliot really has,
    This disease would leave some people shakeing at their knees,
    But not this young man, he’s got a master plan,
    He’s going to live his life and never look back
    The only thing I want to do,
    Is give him a pat on the back.

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